My last born. My Rob. His life is becoming a driving miss daisy scene and it’s pissing me the fuck off! Robbie and his beautiful girlfriend Laurie live together here in the home I raised my family in. It works. Everyone gets along. I have people to cook for and we enjoy each other’s company. Financially it makes sense. Robbie has had some health issues in the past so we’re kinda each other’s rock. If you know Rob I don’t have to tell you that he is one of the funniest, kindest most adorable guys on this planet. He drove me to preop Tuesday night and i insisted on walking from the parking garage into the hospital. I didn’t want the cane He held out his arm and said “I got you mama” and for the first time in I don’t know how many years I held his hand. I may have to get him one of those hats Morgan freeman wears just to fuck with him.
The sudden loss of independence has been the hardest thing for me. How do you go from doing everything on your own to no longer being able to drive and ease through daily tasks??My eyesight is wonky at best and I literally had to look at the calendar 15 times yesterday to figure out what day it was. But I’m dealing with it and it’s ok. I am able to get these posts out (run on sentences, bad grammar and all) make a delicious cup of Italian roast coffee and feed all the animals Twice pouring the cats dry food into the water bowl and she looks at me like “what is wrong with you “????
I see the neuro oncologist today. I have some preliminary pathology that says the beast is a WDH wild type grade 4 glioblastoma. It also says it’s infiltrating (thank you captain obvious) Friday morning another MRI and on Friday afternoon Addie set up a virtual visit with Lenox hill about clinical trials for treatment options We are learning so much and we will not let the statistics stop us We are keeping it real so that together we can make smart decisions I am grateful for all the information being relayed to us and ask that y’all share what I post in hopes of helping someone else
I’m still feeling strong just a little tired The night sweats are no joke
I hope you all have a great day
With love, sunshine and gratitude always
Jeanette XO
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